bad boys are hitting back but we got a plan of action

Oh, I really hate writing on the blog with negative news, but it is part of my journey and I have to shout and write it out “loud” in order to fight back!

The last 4 weeks I was suffering from headaches, which have been coming and going, very irregular, sometimes severe sometimes very little. At my weekly visits at the doctors I told them about it and we observed it, and decided when I go for my next CT/ pelvic scan I’ll go for a brain scan as well. I didn’t feel very well on Monday, Tuesday 7.5. & 8.5.) but back in shape on Wednesday. When Alwyn and me left Thursday morning for the scan, a headache attack came over me again, from one moment to the other. Whilst I was waiting for my scans I had to vomit a few times and after the brain scan I had to go on the drip. I felt so nausea and drained. The doctor admitted me to hopsital straight away and came two hours later with the bad news of the cancer spreading to my brain. Alwyn and me could not believe it, we were so sure the headaches were a side effect from the longterm chemo I was getting. I have two tumors in my brain, one which is a bit bigger but close to my skull, it is almost a size of a golf ball but the swelling makes it as big as a tennis ball. It does have a little impact on my eye sight and also describes why I had the dizzy feeling lately. The other one is much smaller but close to my brainstem, so further down.

After digesting the shocking news and informing our families, we just spent time together at the hospital and were hoping and praying for a miracle. The next morning we went to see my fabulous Oncologist Dr. Pienaar, and like my breast buddie fighter NIkki told me, she had a plan for us straight away. Yes, the cancer has hit back, but we have got a striking plan to give the bad boys such a kick, so they can feel the TRUE Harder!!!! It was amazing to see how everything fell into place after speaking to her. I do not want to go into all the details, we had a few doctor marathons again, everyone reacted promply and competent and the plan of action is the following:

Next week Tuesday I will have a brain operation to get the big Tumor out. I will probably be in ICU for 2 days, and up to 10 days in hospital afterwards for recovery. We will then start the radiation, 12 sesssions, 1 each day for approx 10 min, to treat both tumors in my brain. After that I will have to start another chemo, which will most probably be the “red devil” one. Yes it is evil, but hey- I do not care as long as I can get these bad boys out of my system, I do anything. I met my Neurosurgeon as well, who is a very straight forward and experienced surgeon, who we both fully trust. He and Dr. Pienaar explained everything very clearly to us, which makes us fell confident and hopeful that everything will work out well. I know I am repeating myself in my blog, but I it is incredible to see, how everyone reacted after the news were spread and how from one moment you feel torn and lost, the next moment you feel you are in this warm nest, full of hope, fighting spirit, love…. WOW!

My Mum booked a flight on Thursday night, and arrived Sunday morning. All of a sudden this whole big world, becomes a little place and everyone feels so close! Thank you my dear family and friends, I can feel all your comfort and support. I also would like to tell you, please do not pity me. I do not want any pity. All I need is fighting spirit! Nobody on earth deserves to go through what I have to go through, but it just does not help to get upset and angry about it. We just have to accept the paths we are on in our lives, and have to make the best of it. And it takes you to beautiful places with all these up’s and down’s. Remember everything happens for a reason.

I was discharged on Saturday from the hospital, and am at home now. I feel alright, getting a lof of medication to get rid of the swelling before my surgery, and also have to take Epilepsy tabletts so I do not get any fits. If I take any other medications now or get sick my op has to be postponed, which we obviously don’t want to happen. We want to fight right here and now.

I have also decided to leave my little projects I had going on the side line and really focus on me and my health only. I know the coming months will be tough, but I also know that I will get back to full health and strenght soon again. With the help of God, family, friends and LOVE we can fight back. I know it and I can feel it. As well as I know that I will get married to my beloved Alwyn end of October and as well as I know that I will be able to fly home for christmas this year!

The coming weeks I will focus more and more on living healthier, getting a rich anti-oxidante diet, work on my mental health etc. I will ONLY focus on myself, which I think I haven’t done enough until now. It is part of the process i have to learn. I am thankful for any helpful links, which you can comment on below or send me via Email.I told my doctor as well that I look at the cancer in a holistic way, I know the drugs are one thing, which I can not avoid, since my cancer is so aggressive. But she approves of the spiritual and alternative medicine as well, one just has to find the right combination, because it can become more toxic as well, since the impact of it can double or half the effect as well. So it’s all things to source out now.

I will keep you a bit updated via facebook, for those who are registered. Obvioulsy I won’t be in the state to write a lot in the following weeks, but I will try my best.

Until then, keep me in your prayers and thoughts! Stay positive, keep smiling and we will rock and embrace this world all together!

Love,

Helen

Advertisements
This entry was posted in Uncategorized. Bookmark the permalink.

19 Responses to bad boys are hitting back but we got a plan of action

  1. Alwyn says:

    Hi my Love , my soul sister. Wow what a few days we had. I believe that you ARE healed. By His stripes you are healed. I love you so much and cant wait to get married to you in October. We will fight with you. You are amazing.

  2. Ronel says:

    You are truely amazing! You will win this battle and we will fight with you every step of the way!
    Hugs!

  3. Sarah Norman says:

    Go Helen take care. Look after. Luv from the Normans

  4. Lori says:

    Helen my liefste vriendin, jy is n ware inspirasie vir ons almal! Sterkte vir dit als vat voorle die volgende paar weke en mag jy rustigheid kry en dit als so pynloos moontlik vir jou wees. Weet jy word geseen elke stap van die pad. My hero, love you to bits. X x x

  5. Liandi says:

    Dear Helen, thank you for sharing your journey with us…. you bless us with your hope and fighting spirit, with your determined and faithful attitude. You are indeed amazing and such an inspiration!
    I second what Alwyn said – ‘by His stripes you are healed’… and we will fight with you until that healing manifest in your body. So army… here we go! Bad boys your days are over….!
    xx

  6. miss portugal says:

    dearest helen, always in our prayers and wishing to God above to see you soon, healthy and MARRIED! we send you all our love and hope.

  7. Eyke Graefe says:

    Liebe Helen ,
    Kaempfe , kaempfe , kaempfe!!! Zeig diesen bad boys wie stark Du bist !
    Ich denke viel an Dich und wuensche Dir fuer Deine Op alles , alles Gute …
    Loads of Love und ich weiss, Du schaffst das !
    Wir kaempfen alle mit Dir
    Xxx Eyke

  8. Pamela says:

    Meine liebe Helen, Du schaffst das, denn Du bist viel stärker als die bösen Jungs. Wir glauben ganz fest an Dich. Mit so viel positiver Energie und Deiner unglaublich optimistischen Einstellung kann’s nur wieder bergauf gehen. Der Oktober naht und dann gibt’s ein rauschendes Fest. Alles, alles Gute für nächsten Donnerstag. Wir werden in Gedanken bei Dir sein und Dich mental untersützen. Fühl Dich ganz lieb gedrückt. Gros bisous 🙂 Pamela

  9. Matthew Hall says:

    With You all the way Helen love loads Matthew xxx

  10. Anna says:

    Liebe Helen, Deine Power und Energie sind atemberaubend und bewundernswert – und damit diese nie ausgehen, kommt hier Nachschub aus Berlin! Ich denke ganz fest an Dich und wünsche Dir ganz viel Kraft für die kommenden Wochen! Lass Dich von Deinen Lieben auffangen und stützen, es ist so schön zu hören wer alles für Dich da ist. Fühl Dich ganz fest umarmt, Deine Anna

  11. Hi Helen,
    Jesus paid an incredible price to give you a wonderful inheritance. In Him all things are possible!! Romans 8:11 But if the Spirit of Him who raised Jesus from the dead dwells in you, He who raised Christ from the dead will also give life to your mortal bodies through His Spirit who dwells in you.
    Helen, continue to be strong. In Jesus name facts follow truth. Therefore, stand on the truth of God’s word in Jesus name and believe that the facts of your situation will gradually start following the truth of His promises for you! I am praying for you and look forward to meeting you in future!
    Rousseau

  12. Mary Schoeman says:

    Our dear and very special friend Helen. We are so sad to read that you have been through such a tough time. We are ALL in this fight with you and we know that God will carry you through. You can do it!! You are an admirable lady because you are so cheerful with it all. Thank you for your inspiration and wonderful example to us. You are in our prayers and thoughts! Alwyn thankyou for being YOU!!!
    Here is a prayer of Saint Theresa for you both.

    May today there be peace within.
    May you trust God that you are exactly where you are meant to be.
    May you not forget the infinite possibilities that are born of faith.
    May you use those gifts that you have received, and pass on the love that
    has been given to you.
    May you be content knowing you are a child of God.
    Let this presence settle into your bones, and allow your soul the freedom to
    sing, dance, praise and love.
    It is there for each and every one of us..
    WE LOVE YOU BOTH DEARLY
    Uncle Hennie and aunty Mary xxxxxxx
    *************

  13. sarah says:

    hey you beauti-full spirit
    how are those guys possible still hangin around…you’d think they would have got the message! How about we all choose a time and date suitable to all nations and speak quietly, strongly in their ear “Get outa here!” The more of us speak at the same time…those bad boys will surely bugger off!
    Love you sweet heart…think only of you, and we will do the same. know that you are surrounded, supported and loved the world over. We cocoon you with our love and hold you in our hearts…go kick ass and we will all see you free of your burdens soon.

  14. sarah says:

    mmmm..sorry about that. didnt work, my computer knowledge is pretty limited!! basically google david wolfe on cancer reverse…i will mail you some better links xxxxxx

  15. Freda van der Merwe says:

    The brilliance of your faith, courage and love radiates out, touching and inspiring us. We are so lucky to know you! Please remember our offer of help. With armfuls of loving warm wishes, also to your Mom and Alwyn. The PinkDrive team in Cape Town. xxxxx

  16. Helen, you are without a doubt the most inspiring person I have every come across in our pink drive! If we stick together there’s so much we can accomplish, because no matter what the struggle, as long as you’ve got somebody, you will make it.You need to konw that you are not alone. You need to hear that other women share your experiences. You need reassurance that there’s someone who understands, someone who’s been there, and done that. As women, we take turns encouraging, supporting and cheering one another on! The entire PinkDrive team xxxxx

  17. Dennis Bock says:

    Liebe Helen,

    ich wünsche alles Gute und viele erfolgreiche Schritte auf dem Wege der Besserung!

    Viele Grüße aus Osterrönfeld

    Dennis (Bock)

  18. sharon smith says:

    Hey our little champion, you are an amazing women and an inspiration , I wish we could be of more help but as you know there are all sorts of methods to try and one of our inhouse survivors has fought this battle and won against all odds. Her name is Mandy and she woud love to help you by sharing her methods contact her on 0829269212
    we love you honey be strong sharon at pinkdrive

  19. Glenda Fourie says:

    Hi Sweety so sorry things are not going good at the moment, but as you told me at the Pink Drive stand – what can we do but fight, fight and fight again…..I thought I had it tough when my cancer returned after 12 years………please stay in touch, lots of hugs glenda and lauren..xxxxxxxx

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s